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ASSISTIVE TECHNOLOGY FOR ADULTS
WITH DEGENERATIVE NEUROLOGICAL CONDITIONS
Abledata. Provides a searchable database of over 23,000 assistive technology products, including augmentative communication devices.
ALS Association. Good information on ALS and associated issues and resources. Includes specific sections on speech and swallowing management.
ASHA (American Speech-Language Hearing Association). The parent organization of professionals working with individuals with communication impairments.
Augmentative Communication Products. A listing of all AAC products available and their manufacturers. Provides direct links to manufacturers and other worthwhile web sites. www.augcomm.com
Barkley Augmentative and Alternative Communication Lab. Developed at the University of Nebraska-Lincoln, this site is good source for AAC users, vendor information, and AAC terminology.
CAMA: Communication Aid Manufacturers Association. CAMA is an organization of AAC manufacturers that work together to advance the field of augmentative communication. They conduct full-day workshops demonstrating a variety of AAC products.
Catfish Hunter Chapter of the ALS Association. Provides information on research, treatment, advocacy, and patient and caregiver services. This is the official NC chapter of the National ALS Association and sponsors support groups and an equipment loan program.
ChipSpeaking. A free downloadable text-to-speech software program which allows a computer with sound capability to become an augmentative communication device.
CINI-Communication Independence for the Neurologically Impaired. Provides information and educational services for professional and patient use. Includes excellent summary sections on available higher tech communication devices and software (including descriptions and links to manufacturers) and a very good FAQ section on typical consumer/family questions about augmentative communication.
Closing the Gap. Features an international conference and newsletter dedicated to computer technology for persons with special needs. Includes actual conference session content and links to other helpful resources.
E-triloquist. A free downloadable text-to-speech software program developed by the family of an ALS patient. Allows a computer with sound capability to become an augmentative communication device. Has many excellent features.
Louisiana Assistive Technology Access Network (LATAN). Provides excellent information and resources on assistive technology, especially augmentative communication.
March-of-Faces. Provides excellent information, resource articles and links regarding ALS. Very helpful for professionals, consumers and caregivers. Includes a free downloadable on-screen keyboard and other computer enhancements.
MDA (Muscular Dystrophy Association). Offers information and resource links for specific diseases in the Muscular Dystrophy category (including ALS, Parkinson’s, Huntington’s Disease, Myasthenia Gravis, etc.)
National Multiple Sclerosis Society. Information and publications on MS.
NC Assistive Technology Program. Information regarding services, contacts, products and access issues for disabled NC residents i9n need of assistive technology. Hosts an Exchange Post listing for buying and selling used assistive devices (www.pat.org), maintains the Check-It-Out Equipment Loan Program, and provides funding information through its Funding Specialist, Annette Lauber ([email protected] or 919/850-2782). www.ncatp.org
Rehabilitation Engineering Research Center. Performs research and disseminates information on communication enhancement. Excellent information on Medicare coverage of augmentative communication devices.
RESNA (Rehabilitation Engineering and Assistive Technology Society of North America). An information center to address research, development, dissemination, integration and utilization of knowledge in rehabilitation and assistive technology.
Trace Research and Development Center. An interdisciplinary research, development and resource center on technology and disability. Provides current information on applied research and design. Also has electronic library and in-house publications.
United Cerebral Palsy. Excellent information and resource on cerebral palsy, especially on funding issues.
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